Noah's Story
Chapter 4: Boston Children's Hospital (6 West)
On 07/18/17, Noah had surgery to place a “central line” in his chest (CVL), and then he was moved to the transplant floor, 6 West. The next day (07/19/17), Noah had a rash all over his torso. This was when we determined that his skin is extremely sensitive to a common cleaning agent they use in hospitals – Chlorhexidine. It was marked as an “allergy” in his chart.
Central Line (CVL)
Room 610 on Floor 6 West
Chlorhexadine Rash
Over the course of the next week, Noah received Chemotherapy (Busulfan & Fluderabine) to remove his existing damaged cells and make room for the new donor cells.
Chemo: Busulfan & Fluderabine
Playtime!
Naptime
Sleeping w/ Mask on during cap change on the CVL/PICC
5 Months Old
Getting ready for Transplant
"Tough Dude" ready for transplant
Happy Transplant Day!
Happy Transplant Day!
Noah received his life-saving transplant on 07/26/17 at just 5 months old.
Over the next few days, Noah began to show side-effects from the Chemo and Transplant, including nausea/vomiting, and diarrhea with a pretty bad diaper rash.
On 08/01/17, Noah had PT in the morning and Otolaryngology (aka: Ear, Nose, Throat) came to see him because he was having a little trouble breathing. After putting a scope down his nose/throad, they decided that he might have enlarged adenoids and thought a sleep study would be a good idea. The nurses put a “blow-by” near him, to help with his Oxygen and later added a nasal cannula. I decided to go out to lunch because I wasn’t worried (and because the staff often encouraged me to get out of the room).
Tummytime during PT
Blow-by to help w/ Oxygen
Nasal Cannula to help with Oxygen
On 08/01/17, Noah had PT in the morning and Otolaryngology (aka: Ear, Nose, Throat) came to see him because he was having a little trouble breathing. After putting a scope down his nose/throad, they decided that he might have enlarged adenoids and thought a sleep study would be a good idea. The nurses put a “blow-by” near him, to help with his Oxygen and later added a nasal cannula. I decided to go out to lunch because I wasn’t worried (and because the staff often encouraged me to get out of the room).